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    Tuesday, June 1, 2010

    Where to begin?

    A lot has gone on in this past week in the world of autism and biomedical community. I and many other parents like me, find ourselves at odds with many people over Dr. Andrew Wakefield. The recent broadcast with Matt Lauer is really what upset me and many other parents. We often find our side of the story (our doctors, research and information) not being told. We even find the reporters/journalists lying about information about our doctors.

    After watching Dr.Wakefield stand up for parents like me and our children it makes me be proud to know there are doctors out there that are willing to risk it all! Including their reputation and license.....

    I try to explain to others why I believe what I believe and here is what I have thought of carefully to respond to that question with more appropriate answer than because my son is proof that biomedical works.

    If you would have asked me 10 years ago if I would be the kind of parent to question authority, or our government agencies I would have told resoundingly NO. I was not brought up to buck the system, we were taught to always believe the best in others, including our government, and I did, until my son was diagnosed with autism. Something shifted in my soul so dramatically that day. I mourned the loss of the future I had hoped for my son, I mourned for my sons health and abilities in life. I mourned for my child's life.

    I remember clearly that day when the doctor told us, Your son has autism... and I felt faint... She kindly told us, if we got him intense therapy he may improve, and he might speak one day, she rattled on and on about the diagnosis and that there is no cure and they don't know why it happens..... and  I just kept thinking.... NO NOT ANOTHER CHILD..... PLEASE LORD...... Don't take him away from me too...... I was heartbroken and could do nothing but cry.

    About a week later, after I allowed myself some time to feel the real pain that is involved with this diagnosis I began to press on full force for Handsome. I read everything I could get my hands on whether that was articles in magazines, books, emails, posts, websites... I read it all! In my late night readings I found two websites and one book that would change the course for Our Journey..... Generation Rescue, TACA and Evidence of Harm. I dug in deep and read everything they had for new parents on the websites and researched it all. I spoke to other parents who were doing biomedical interventions and parents that were not, and spoke to Doctors who were DAN docs and regular pediatricians who were not, and after all my research I weighed out the options and decided to go the biomedical road for our son. Glenn agreed and I started the process one thing at a time. First the diets, and then supplement by supplement and eventually to where we are today, and the reason I chose this road.... there is HOPE on this road and the other road is dark and HOPELESS. I knew we could do these treatments with Doctors who were greatly respected and loved and I am so glad we did. Handsome, is NOT the same child you would have seen on 10-13-2006 when we heard the word autism. He has changed dramatically, don't get me wrong, he still has problems and many hurdles to overcome, but I am so grateful for the recovery that IS happening.

    I know that may be a LONG answer as to WHY I believe what I do, but I hope it helps to understand that there is emotion involved in this process. I have found so many people lately, blirting out things like, "I make my decisions from science and evidence of proof, there is NO emotion to it." and frankly, thats just a crock of crap. There is always emotion involved when you are dealing with your children. I truly believe that is why we chose to take our children to DAN doctors because they are involved emotionally, our children are NOT just another patient...They have invested their lives to these children's health and I am forever grateful for Doctors like our DAN doctor Dr. Cindy Schneider and for Dr. Andrew Wakefield for he has sacrificed so much for our children, and I will back him to the end. He has fought for our children and I will fight for him as well.
    So now, I am the kind of parent that does buck the system and questions what our government is doing for/to our children and I am proud of it!

    So the next time you see me ranting about biased media coverage or people who are degrading Dr. Wakefield, or you notice my status constantly saying " The only Callous Disregard our children have ever received is from our own government", remember the road that has lead me here and try and understand why.

    Much Love,

    Matthias through autism 2006 till today

    With this video

    Press play first, then press pause, and let it load for a few moments, otherwise the video will stop to load it alot when your watching it.

    This song speaks so much to me,to know the trials I have gone through are not .. Unredeemed by Selah

    Matthias Road to Recovery - This is what Faith can do! .