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    Saturday, June 6, 2009

    One of THOSE days

    Every have those days, where your son/daughter just stims verbally all day long!!!! Most days it doesn't even bother me, its like back ground noise, but today.... well my nerves are shot :( See the picture of my handsome covering his ears? Thats what momma wants to do today.....

    I have timed exactly how long he has been doing this and as of right now, since I have been home from the grocery store he has been saying " ya ba da ba da ba da ba, ya ba da ba da ba da ba, baby, baby, baby, baby, baby, baby(to the tune of jingle bells" In a high pitch voice for the past 30 minutes. There will be momentary breaks in this madness but only for about 5 minutes and those consist of echolalia also :) Mostly " Hey do you know where the green aligator plays?" or "Thats Elmos World!!!!" or "Dorthys babysitting" over and over again ... Fun stuff.

    NORMALLY I do not let this go on, but mommy is trying to get the house in order from unpacking groceries with Grani and taking a moments break for some sanity.

    Oh the joys of autism.. sometimes I just wish I could wrap the autism(not my child) up in a package address it to the CDC and send it on its destructive way back where it came from!!!!

    My mom said he has been doing this all day since I left on my grocery shopping excursion, better known as Saturdays for Lisa :)..... Speaking of Saturdays, this day is whinding down and I need to get going....

    Time to make dinner, Time to make dinner, Time to make dinner, Time to make dinner,

    Hold on a second Is echolalia catchy :) LOL just teasin :) Gotta have a little fun with it :) This way I don't loose my last marble :)

    Much Love,

    Friday, June 5, 2009

    Can you believe...

    I am once again sitting with Handsome and he is yet again constipated :(.... I feel so very badly for him.... He was literally crying tonight because he wanted to so badly to be able to go poop...... I just don't know what to do anymore, I've tried everything to keep him 'regular'.

    I'm waiting to get his loan funded so I can get him to his doctor and get the right supplements/meds to help him. Right now I feel helpless, its 12:30 am and I can not fall back to sleep.

    I got more Mag Citrate for him tonight, and by the time I got home, he had fallen asleep. When he wakes up in the morning I will give it to him, thats assuming he will sleep all night.

    Did I mention that Matthias will be loosing his wonderful Music Therapist after August 4th :(... Because of funding cuts in AZ he will be forced to only see CASH patients in the late afternoons and he will see his DDD patients in the morning hours. Well see, Matthias starts Kindergarten in August and its all day, so you see where this is going....

    I put his name on a few lists to see if any other therapist will be doing this, but havne't heard anything yet.

    So, if you could... please pray for these two things:

    • Matthias would be 'regular' and be able to poop
    • New music therapist for the school year

    Well I'm going to try and get some sleep.....

    Much Love,

    Thursday, June 4, 2009

    U.K. Autism Study Finds Prevalence of autism 1-64 !!!

    Hi all :)

    Well this report just came out today! It makes me so sad that our wonderful country is so behind on getting the most current information out to the public. Read on its very interesting!

    U.K. Autism Study Finds Prevalence 1-64

    By: Carin Yavorcik

    Autism Society Welcomes New Studyand Calls for Continued Focuson Supporting People with Autism in America.

    A new study by researchers in the United Kingdom finds that the prevalence of autism in that country is much higher than previously thought. The current estimate of autism in the U.K. is one in 100. But the new study, led by Professor Simon Baron-Cohen of the Autism Research Centre at Cambridge University, found that for every three diagnosed cases of autism, there are two that are not diagnosed meaning the true prevalence in the U.K. could be as high as one in 64.

    The Autism Society applauds this research and hopes to see similar studies done in the United States to help address the comprehensive need for services to support individuals with autism across the spectrum.

    “The data from this British study reflects what we are also seeing here on the ground in America,” said Autism Society President and CEO Lee Grossman. “We believe the incidence rates here are approaching those in the United Kingdom. In the U.S. educational system, states are reporting higher prevalence even with coding differences among states. There has been an unanswered and urgent need for services and supports for people with autism for decades, and we need to act now to serve.” Mr. Grossman is also a public member of the Interagency Autism Coordinating Committee of the U.S. government.

    In the United States, where current estimates place the prevalence of autism at one in 150, the Autism Society hears from many families whose children still have difficulty getting a diagnosis and adults who have never been identified. Reports from the state of Indiana indicate the current rate of identification in students is one in 101, and does not include children who are home-schooled or educated in private institutions, according to the Indiana Resource Center for Autism.

    The U.S. Centers for Disease Control and Prevention are expected to release updated estimated prevalence rates this year.“Perhaps the most important issue raised by the Cambridge study is not simply the higher prevalence rate of autism but, rather, the tremendous heterogeneity in its expression,” said Dr. Edward Carr, Leading Professor, Department of Psychology, State University of New York at Stony Brook and a member of the Autism Society’s Applied Research team. “That means that more and varied resources will be required to do full justice to the wide range of support needs across the spectrum from severe, incapacitating disability to subtle yet challenging forms of the condition.”

    The study was school-based, with researchers sending diagnostic surveys to the parents of 11,700 children ages 5-9 in participating schools. Based on the scores, children were brought in for further assessment, with researchers finding a number of undiagnosed cases.“This research, conducted by prestigious and ethical researchers, should generate a call to action across schools, universities, community agencies and others who will be tremendously impacted by the rising numbers of individuals with autism spectrum disorders (ASD),” said Dr. Brenda Smith-Myles,

    Autism Society Chief Program Officer, a member of the Society's Applied Research team and one of the world’s most-published applied autism researchers. “Today, the best options to ensure optimal outcomes for individuals with ASD are education and multi-faceted supports for home, community, and employment success. All who teach and support individuals with ASD and their families must understand the complex nature of the disorder and be educated on how to provide multi-faceted, comprehensive services that will serve their long-term needs.”“These numbers are very concerning. It is hard to believe that this many people with autism have always been among us,” said Dr. Martha Herbert, Assistant Professor of Neurology at Harvard Medical School, a pediatric neurologist at Massachusetts General Hospital and a member of the Autism Society’s Applied Research team. “It is both prudent and pressing to look for environmental reasons for these dramatic figures.

    Perhaps there is something we could be doing differently that could help prevent some of the suffering that comes with this level of need.”There are several bills currently active in U.S. Congress that could help address these needs, most notably the Autism Treatment Acceleration Act, a comprehensive bill that would provide for adult services, care centers, national teacher training and health insurance. Learn more about this legislation and others at our Take Action page.

    Wednesday, June 3, 2009

    Uneventful day....

    So not to much to post on today really.... today was a normal day. I got up way to early because some children were playing with bottle caps at 4am, which doesn't sit well with one especially since the night before we had an arson setting fire to several cars in our parking lot right behind my townhouse. Nice huh ???

    But after i got the boys settled back down they woke up around 7am, got them ready for breakfast and then left for work. After I was done working I had to pick up Matthias to go to OT :) Which have I mentioned that I love his new OT :) she is the BEST!!! The only draw back is its pretty far away. The therapy clinic is 30 miles away, and thats one way, and we go twice a week.... OUCH!!! But I will continue to take him there because he gets such great care :)

    After his session today, he came out and had a tigger sticker because he was such a good boy :) This has been happening more and more lately, which makes this Momma a happy camper!

    I'm still seeing lots of great progress!!! I can't tell you how happy it makes me that I will be driving with Matthias and he is actually talking to me :)

    Well I must go, I promised this little boy

    that he could watch "The Pajanimals "before he went to bed... "Are you ready for beddy bye, the Paganimals are ready for beddy bye, The pajanimals are ready for you, to get ready for beddy bye too, Goodnight Pajanimals!"

    Don't you just love it when you know all the songs your children do :)

    Good night everyone!

    Much Love,

    Tuesday, June 2, 2009

    Action For Autism

    Today is the 2nd annual telethon "Action For Autism" that KTAR 92.3 has for the Southwest Autism Research and Resource Center each year(SARRC).

    I myself was able to go to SARRC and get help for Matthias. This center is a great center trying to help the Phoenix autism community get help for their children.

    Please if your in the beautiful state of Arizona/or even if your not :) Call 602-218-8200 KTAR 92.3... Tune in & Listen/donate!!!!! HELP children like my Matthias today :)

    Much Love,

    Monday, June 1, 2009

    Monday Night Tea Time

    ***Side note - I love these automatic posts, this is being written the night before, but will post tomorrow :) cool :)

    Every Monday night for the past three months I have tea with some of the most important people in my lives.... My Mom(wonderful woman who takes care of my kiddos during the day, with out her I would be lost), sister 'D'(who has been there for me through thick and thin, she is like my rescue rope) and my niece 'E'(who has made a huge influence on my life). Its a wonderful thing to be able to sit with woman you love in your lives and just have girl time and talk.

    These women listen to me talk constantly about Matthias progress (or lack of at times). They hear me complain about our broken system that doesn't work at its fullest potential for my child, they listen to me rejoice in the HUGE amounts of progress my son is making, they listen to me rejoice in the fact that Littleman is growing and developing as any typical 15 month old boy.... they listen..... something we as women need the most of in our relationships, someone to listen to us.

    I am ever so thankful to them all for loving me where I'm at, and for always having a listening ear. Words can NOT express to you how much I love these women in my life. Ilove being able to be a part of their lives, to grow and listen with them. I pray for them everyday, and ask that the Lord would bless their lives in ways that no one here on this earth could explain. Would you do the same with me :) Please pray with me for these beautiful women.

    Tea time is the best time of the week for me! I would highly recommend it to all of you!

    Here's to another great night spent talking, laughing and listening!

    I love you Mom, 'D' and 'E' Thank you for everything you have done for me and my boys, and for always listening!

    Much Love,

    Sunday, May 31, 2009

    Pictures of Our Day :)

    Day dreamer... Isn't he so adorable!!! Love him so much!

    OH THERES my shadow!!!!

    Baby got back!

    WHAT is he doing momma????

    Is that you God? I promise I'll be good tonight

    I just have to say I LOVE LOVE LOVE This picture!! I captured it really well and I used my PSE to edit it :) To much fun!
    Isn't he so handsome :)

    Such a sweet face! Love him soooo!

    Matthias through autism 2006 till today

    With this video

    Press play first, then press pause, and let it load for a few moments, otherwise the video will stop to load it alot when your watching it.

    This song speaks so much to me,to know the trials I have gone through are not .. Unredeemed by Selah

    Matthias Road to Recovery - This is what Faith can do! .