You've met ONE child with autism................. I heard that saying not long after my son was diagnosed with autism in 2006, and oh how true it is. No child with autism has the same signs, symptoms, and illness' than every other child with autism. That's what makes autism so hard sometimes......
You see, being a mom of child with autism I OFTEN come across others, whether it is here on my blog or on Facebook, who like to compare themselves to my child. Each time I have come across them they are always someone who is either an uneducated idiot, or someone who themselves is diagnosed with a higher functioning form of autism and can live on their own and function in this world. While I think it is great that they are able to live life and function in this world even though they still struggle, socially, they are by NO MEANS comparable to my child or countless others that I know.
Its honestly, annoying to hear them rant on and on about how they do not want to be cured, that there is nothing wrong with people with autism and please stop trying to find a cure. I've even heard some of them tell us parents that if we pay a little more attention to our kids, rather than trying to find a cure for them, maybe we would notice that there isn't anything wrong with them at all and all they need is a little more attention from us.
You see, being a mom of child with autism I OFTEN come across others, whether it is here on my blog or on Facebook, who like to compare themselves to my child. Each time I have come across them they are always someone who is either an uneducated idiot, or someone who themselves is diagnosed with a higher functioning form of autism and can live on their own and function in this world. While I think it is great that they are able to live life and function in this world even though they still struggle, socially, they are by NO MEANS comparable to my child or countless others that I know.
Its honestly, annoying to hear them rant on and on about how they do not want to be cured, that there is nothing wrong with people with autism and please stop trying to find a cure. I've even heard some of them tell us parents that if we pay a little more attention to our kids, rather than trying to find a cure for them, maybe we would notice that there isn't anything wrong with them at all and all they need is a little more attention from us.
Oh yes, the refrigerator mother comment! So my child has autism, because apparently I don't pay attention to him.......
Yes lets see...........that's right, I never paid attention to the chronic ear infections that we didn't know he had until it was to late because he couldn't tell us he was in pain we were just told it was a normal reaction to his vaccinations!!!! Or maybe it was when I never paid attention to the fact that my son still was not walking and talking by 12 months old....... or mabye I never paid attention to his chronic constipation issues that has me giving him magnesium citrate in doses that would make a typical kid his age poop in minutes, takes my son days to poop. Or perhaps its when I'm not paying attention to all the eczema out breaks he has, where I have bought every lotion, ointment or cream on this planet that is recommended for it and NOTHING works, or maybe its when I'm not paying attention to the phone calls from school because he is having meltdowns about having to use a new picture schedule because it has a change in his routine for the day..........Ya your right, I'm not paying attention, that's why he has autism!
Frankly, I'm tired of people who think just because they can function in this life as a typical human being and they have the autism diagnosis that everyone else should not want to find a cure for their child.
Do they really honestly think any mom or dad who sees their child squirm in pain because they can't go to the bathroom, or scream for hours because they can't tell you what they need from you, any mom or dad would just accept what they see and have their child learn how to live with it? No a mom/dad is going to move heaven and earth to try and find a cure for what is ailing their child, which is exactly what we are doing!
Really, I have no time for people like this and I wish they would stop trying to speak for the children who really, desperately NEED A CURE!!!!
Yes lets see...........that's right, I never paid attention to the chronic ear infections that we didn't know he had until it was to late because he couldn't tell us he was in pain we were just told it was a normal reaction to his vaccinations!!!! Or maybe it was when I never paid attention to the fact that my son still was not walking and talking by 12 months old....... or mabye I never paid attention to his chronic constipation issues that has me giving him magnesium citrate in doses that would make a typical kid his age poop in minutes, takes my son days to poop. Or perhaps its when I'm not paying attention to all the eczema out breaks he has, where I have bought every lotion, ointment or cream on this planet that is recommended for it and NOTHING works, or maybe its when I'm not paying attention to the phone calls from school because he is having meltdowns about having to use a new picture schedule because it has a change in his routine for the day..........Ya your right, I'm not paying attention, that's why he has autism!
Frankly, I'm tired of people who think just because they can function in this life as a typical human being and they have the autism diagnosis that everyone else should not want to find a cure for their child.
Do they really honestly think any mom or dad who sees their child squirm in pain because they can't go to the bathroom, or scream for hours because they can't tell you what they need from you, any mom or dad would just accept what they see and have their child learn how to live with it? No a mom/dad is going to move heaven and earth to try and find a cure for what is ailing their child, which is exactly what we are doing!
Really, I have no time for people like this and I wish they would stop trying to speak for the children who really, desperately NEED A CURE!!!!
Posts
1 comment:
I am astounded that anyone would suggest such things to you. I'm so sorry you are having to deal with that. Inexcusable. Plain and simple.
Post a Comment